Guy's and St Thomas' is among the UK's busiest and most successful NHS foundation trusts. We provide a full range of hospital and community services for people in south London and as well as specialist care for patients from further afield including cancer, renal, orthopaedic, respiratory and cardiovascular services.

Guy's is home to the largest dental school in Europe and a £160 million Cancer Centre opened in 2016. As part of our commitment to provide care closer to home, in 2017 we also opened a cancer centre and a kidney treatment centre at Queen Mary's Hospital in Sidcup. St Thomas' has one of the largest critical care units in the UK and one of the busiest emergency departments in London. It is also home to Evelina London Children's Hospital.

Evelina London cares for local children in Lambeth and Southwark and provides specialist services across south east England including cardiac, renal and critical care services. We lead a number of specialist service networks aiming to ensure children are treated locally where possible, but have access to specialist expertise when they need it. Our community services include health visiting, school nursing and support for families of children with long-term conditions.

Our adult community services teams deliver care at the heart of the local communities we serve, working in partnership with GPs, local authorities and other healthcare and voluntary sector organisations. Working with our partners in Lambeth and Southwark, we are focusing on new ways of working to improve care for local patients.

In February 2021 the Royal Brompton and Harefield joined Guy's and St Thomas' NHS Foundation Trust, bringing together world-leading expertise in the care and research of heart and lung disease. Our merger provides a once in a generation opportunity to build a lasting, world-renowned heart and lung centre, providing the highest quality care for patients and conducting world-leading research.

We have a reputation for clinical excellence and high quality teaching and research. We are part of King's Health Partners, one of eight accredited UK academic health sciences centres. In partnership with King's College London we have dedicated clinical research facilities including an MHRA accredited Phase I clinical trials unit.

Patients are at the heart of everything we do and we pride ourselves on ensuring the best possible patient experience as well as safe, high quality care. We are proud to have one of the lowest mortality rates in the NHS. Following a comprehensive Care Quality Commission (CQC) inspection in 2019 we maintained our overall rating of 'good'. Our adult community services achieved a rating of 'outstanding'.

The commitment of our 23,500 staff is key to our success. We are one of the largest local employers and we aim to develop and support all our staff so they are able to deliver high quality, safe and efficient care. The 2019 NHS staff survey results show that we have one of the most engaged and motivated workforces in the NHS. We know this has a positive impact on the care provided to our patients.

We have one of the most ambitious capital investment programmes anywhere in the NHS.

Job overview

The haemoglobinopathy education programme is a funded by the health and inequalities team within NHSE and is aimed to locate, develop, create and improve education tools on haemoglobinopathy diagnoses, in a patient-centred way for affected individuals, parents and carers, health care professionals (HCPs) and the public.

The systemic issues identified within care pathways of both sickle cell disease and thalassaemia is the clear and urgent focus for Education and Prevention. Gaps in knowledge, persistent misconceptions and negative attitudes alongside lack of awareness and support in the wider community contribute to poor experience and outcomes for individuals living with the conditions. Improving awareness and understanding of both conditions will lead to informed decisions about conception as well as better health and social outcomes for those affected with the condition, with the aim to prevent serious outcomes of the condition by addressing modifiable factors.

Main duties of the job

The post holder will work with a core hemoglobinopathy education programme team, which will consist of a patient information writing lead, a project manager/policy fellow who provide support, and the education project lead Dr Kesse-Adu - a specialist in managing patients with haemoglobinopathy diagnoses.

The post holder will also be required to coordinate and liaise with patient groups, the education leads across all 4 thalassaemia HCCs and also liaise across the 10 sickle HCCs to ensure awareness of the project and maintain engagement from the clinical community involved in patient care. This post is aimed at driven self-directed and highly organised collaborative individual, who has ability to offer strategic and operational input as well as support, complete a gap analysis and help prioritisation with input from clinicians and the patient community. They will need to consult regularly with, and interact with clinicians, patients and the public.

They will lead on the launch of the completed project, set key performance indicators by which success will be measured.

Working for our organisation

The Trust consists of St Thomas' Hospital at Waterloo, including the Evelina Children's Hospital, Guy's Hospital at London Bridge and the Royal Brompton and Harefield.
Our hospitals have a long and proud history, dating back almost 900 years, and have been at the forefront of medical progress and innovation since they were founded. We continue to build on these traditions and have a reputation for clinical, teaching and research excellence.

We provide a full range of hospital services for our local communities, as well as community health services for people living in Lambeth and Southwark. We also provide specialist services for patients from further afield, including cancer, cardiac, kidney, women's and orthopaedic services, and we are home to the Evelina Children's Hospital. We have one of the largest critical care units in the UK and one of the busiest A&E departments in London. See www.guysandstthomas.nhs.uk for further details.

The Haematology, Oncology and Haematology Trial team, Cellular Pathology and Support Service directorate is one of the largest within the Trust and comprises the following areas each with their own Clinical Lead.
Haematology
Haemostasis and Thrombosis
Cellular Pathology and Mortuary
Oncology and Haematology Trials team
Dimbleby Cancer Care Service

The directorate is headed by Joint-Clinical Directors, currently Dr Karen Breen and Dr Susan Robinson, the Co-Clinical Leads for Haematology are currently Dr Nita Prasannan and Dr Natalia Curto-Garcia.

Detailed job description and main responsibilities

• Working with the project team
  • Complete a gap analysis on currently available education materials on haemoglobinopathy diagnoses aimed at the groups/topics listed below:
    • Inheritance
    • Early life
    • Childhood
    • Transition
    • Conception/fertility
    • Adulthood
      • Co-morbidities/complications
    • Ageing
    • Travel

• Coordinate with HCC's, allied health groups, academic institutions as well as patients, carers and public groups to set priorities.
• Ensure project group delivers the completed project to time, with all agreed time point met
• Ensure at the projects end the here is an evidence based, complete set of information or links to appropriate information hosted on an easily accessible platform for the groups noted above on haemoglobinopathies.
• Liaise to ensure all HCCs have an agreed education assignment plan to reduce replication of work.

• Coordinate and collaborate with multiple external stakeholders including HCC network education leads, clinical experts and patient groups and forums
• Participate in clinical governance activity to ensure information produced is complete and evidence based.

• Support and work collaboratively with the overarching haemoglobinopathy education project team in other areas as deemed appropriate and necessary by the project lead to ensure timely delivery of the project
• Develop and use data, evidence and insights to formulate and drive actions for delivery this education project
• Maintain some flexibility in the working week to participate in activities with the object of ensuring a high standard of the completed project.
• Organise patient, public and clinician input and review groups, to ensure an accessible and appropriate tools are developed.
• To organise and minute regular meetings with the project team
• Report regularly to the project lead
• Participate in events to launch and publicise the project and as part of this, the post-holder will prepare a report of the completed work, suitable for different audiences including patients, HCCs, the project lead and funders.

Person specification

Education

Essential criteria

• Masters degree or demonstrable evidence of equivalent experience
• Evidence of recent and ongoing continuing personal development relevant to the role

Desirable criteria

• Post graduate leadership/ management experience

Experience

Essential criteria

• Project management experience
• Extensive previous experience of working at a senior level in a commissioning, business management

Desirable criteria

• Experience in health care management

Knowledge

Essential criteria

• Understanding of health inequalities

Desirable criteria

• Direct experience delivering a project for a high need but rare group

Behaviours and skills

Essential criteria

• Demonstrate a high level of computer literacy and highly competent use of windows operating systems and Microsoft office applications
• Experience working across organisational boundaries in the Health Service

Desirable criteria

• Ability to plan/implement effective projects

Guy's and St Thomas' celebrates, respects and values the diversity of its staff and patients. We review our policies, procedures and practices to ensure that all employees, patients and carers are treated equitable according to their needs. We are actively committed to ensuring that no one who applies for a job, works or study's at the Trust, or accesses our services is discriminated against on the grounds of race, ethnicity, nationality, disability, religion or belief, age, gender identity , gender reassignment, sexual orientation, pregnancy and maternity/paternity, or marital/civil partnership.

Applications are welcomed from applicants with a disability. We can make reasonable adjustments and offer support and advice in a variety of ways throughout the application process. Equality of opportunity is our policy.

As an organisation we are committed to developing our services in ways that best suit the needs of our patients. This means that some staff groups will increasingly be asked to work a more flexible shift pattern so that we can offer services in the evenings or at weekends.

Flexible working

We are committed to supporting all employees to achieve a healthy work life balance and to work in a way that is best for them and our patients. We will consider all requests to work flexibly, taking in to account the individual's personal circumstances as well the needs of the service. We encourage all prospective applicants to discuss their individual circumstances with the recruiting manager as part of the on-boarding process.

Due to recent changes in the UK immigration rules which affect Skilled Worker Visas, Global Business Mobility, Higher Skill Level and Increased Salary Thresholds, please ensure that you are able to meet the requirements to live and work in the UK before applying. Further information about eligibility is available on the UK Government website.

Your e-mail address is important to us - We communicate to all job applicants via the e-mail address which has been provided on the application form. Please ensure that you check your e-mail on a regular basis.

Please apply for this post by clicking "Apply Online Now."

Employer certification / accreditation badges

Applicant requirements

The postholder will have access to vulnerable people in the course of their normal duties and as such this post is subject to the Rehabilitation of Offenders Act 1974 (Exceptions) Order 1975 (Amendment) (England and Wales) Order 2020 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service to check for any previous criminal convictions.

Documents to download

• Job Description (PDF, 400.4KB)
• Person Specification (PDF, 56.7KB)
• Functional Requirements (PDF, 408.6KB)